But sometimes, it kinda is. I recently received notification that, as someone with a moderate case of Parkinson’s, I might be eligible for a clinical trial for a new gene therapy. Brain surgery! Gene therapy! Them’s fightin’ words. And from where I sit, they’re both words of hope…and also scary as hell. I’d always thought …
Apply for your (not) dream job
Despite retirement, I now have a nearly full time job. Congratulations, you're thinking. WTF I'm thinking. Here's the resume that thrust me into this line of work: Job Title: Healthy person 1973-2021; Not so healthy person. 2021-Present. Skills and qualifications: Lemons into lemonade outlook. Ability to change horses in midstream. Patience of a saint. Goal: …
I’m still here
One week turned into two and next thing I know, it’s been almost radio silence from me for several weeks. My only explanation… laziness. Hey, I’m human! Here’s one more rerun post while I gear up for more observations and opinions about Parkinson’s, aging and whatever flotsam and jetsam make their way into that odd …
Laying low because laid low
By the thing that has no name. I think of it as a broken butt because the center of my left cheek is where the worst of the pain resides. The orthopedist thinks it’s a nerve issue. Relief may be on the way in the form of a cortisone shot tomorrow. I’m keeping my expectations …
Chronic WHAT???
I didn’t get it at first. What everyone meant when they used the phrase “ it will take time.” By everyone I mean the pain management doctor. My movement disorder specialist/ neurologist. The physical therapist. Not having endured many assaults on my heretofore mostly healthy body, I assumed that most conditions could in be fixed …
My Life as a Reader
I knew something was up with me when I was home from school, "sick- in-bed," as we used to call it. I believe I was nine and in the third grade. There was no such thing as a personal computer, and I certainly didn't have a television in my room, and if I had, the …
Did I win?
Tuesay night saw the movers and shakers in the podcastosphere receive the recognition they deserved. From all corners of the globe they came, they cast their pods (huh?), and they shared every manner of story with the world. I "spent" around an hour "at" the gala celebration "at" the "BBC's" iconic Radio Theater, and I …
My body is a three-car pile-up
Or, if you prefer your metaphors more culinary, a Chinese restaurant menu, one from column A (upper body) two from Column B (from tush to toe). How about cinematic? My life is combination chick flick/ medical drama/black comedy. The point is that I’m living in a shitstorm of maladies. I’m visited with Parkinson’s for starters. …
I’ve been nominated!
Check it out! I have been nominated for an Academy Award....oops, that's the unfiltered part of my brain that you're not supposed to see. In truth, I've been nominated for an International Women's Podcasting Award (Click on the down arrow in the catrgory "Moment of Factual Clarity) by Everybody Media. an innovative, women-led media company …
I quit …. And other lies
Yesterday, as I spent way too much time sorting and storing pills, I walked into a different room, sat myself down and made a declaration to myself and to the world: “I am doing the unheard of in the chronic illness community. "I'm taking the day off." What does that mean, exactly? For one, no …
Moving and Shaking 