I knew something was up with me when I was home from school, "sick- in-bed," as we used to call it. I believe I was nine and in the third grade. There was no such thing as a personal computer, and I certainly didn't have a television in my room, and if I had, the …
Did I win?
Tuesay night saw the movers and shakers in the podcastosphere receive the recognition they deserved. From all corners of the globe they came, they cast their pods (huh?), and they shared every manner of story with the world. I "spent" around an hour "at" the gala celebration "at" the "BBC's" iconic Radio Theater, and I …
My body is a three-car pile-up
Or, if you prefer your metaphors more culinary, a Chinese restaurant menu, one from column A (upper body) two from Column B (from tush to toe). How about cinematic? My life is combination chick flick/ medical drama/black comedy. The point is that I’m living in a shitstorm of maladies. I’m visited with Parkinson’s for starters. …
I’ve been nominated!
Check it out! I have been nominated for an Academy Award....oops, that's the unfiltered part of my brain that you're not supposed to see. In truth, I've been nominated for an International Women's Podcasting Award (Click on the down arrow in the catrgory "Moment of Factual Clarity) by Everybody Media. an innovative, women-led media company …
I quit …. And other lies
Yesterday, as I spent way too much time sorting and storing pills, I walked into a different room, sat myself down and made a declaration to myself and to the world: “I am doing the unheard of in the chronic illness community. "I'm taking the day off." What does that mean, exactly? For one, no …
What makes you so special? I ask myself
My podcast about the weirdness of Parkinson's For the past- well, I really don’t know how long, but surely many months-I’ve awakened most mornings with aching legs. They feel as if I’d just completed a day of hiking the Blue Hills near my Boston home except all I’ve done to earn the pain is sleep. …
BONUS POST: FUNDING CUTS MAY AFFECT ALL OF US
I was casually reading the New York Times this morning when I came upon this article about funding cuts for scientific research on, among other things, treatment and cures for all sorts of diseases and medical conditions.. This section made my hair stand on end: Growing up in a small town in Alaska, Alyssa Connell …
Continue reading BONUS POST: FUNDING CUTS MAY AFFECT ALL OF US
I am my father’s daughter.
I feel both jazzed and embarrassed to share a rather private wish. Now you’re chuckling. Her? Embarrassed? She blurts stuff I’d never dream of revealing except to my most trusted friends. And here it is. As I stated, announced with equal parts excitement and shyness. I’m trying to turn this here blog into a book. …
I am my illness
I recently posted a request asking the parkinsonsphere how they’d like to be treated. Several commented”I am not my illness.” Well guess what folks, I’m throwing in the towel and stating, if not proudly but with resignation and conviction “ I am my illness.” If I were not, would I be: Organizing the medication section …
Be extra nice!
Sounds corny, or maybe even alarmist, but it feels to me like we are, at the very least, in the midst of a national nervous breakdown. Let's help one another through it with extra kindness to everyone in our orbit - friends, family, colleagues. andn even people we don't know. So hold that door for …
Moving and Shaking 