That’s what I’ll tell the surgeon some months hence as he prepares to inject a virus into the command center of my very essence, that is, my brain. Yes, the clinical trial testing a gene therapy's efficacy in slowing disease progression in Parkinson's Disease is on, baby! In my typical Only Know What You Need …
Tag: writing
I’ve Flunked Meditation
I’d just concluded a delightful four-day visit with an old friend in Atlanta. We’ve known each other since we met at Camp.Mataponi in Naples, Maine at the age of ten. We were fast friends for all our nine years at camp, lost touch for decades, and miraculously reconnected about fifteen years ago. Our lives are …
Parky dreams…occasionally sweet, always interesting
Sweet dreams I have a couple of friends with whom I chat in the early morning hours, usually between 7:00 and 8:00. And I haven’t turned into my mother. Oh no, it’s way less predictable than that. I’ve turned into my grandmother. I guess the “start-the-day with-a-rambling-conversation” gene skips a generation. Here’s a nearly verbatim …
Continue reading Parky dreams…occasionally sweet, always interesting
My Life as a Reader
I knew something was up with me when I was home from school, "sick- in-bed," as we used to call it. I believe I was nine and in the third grade. There was no such thing as a personal computer, and I certainly didn't have a television in my room, and if I had, the …
My body is a three-car pile-up
Or, if you prefer your metaphors more culinary, a Chinese restaurant menu, one from column A (upper body) two from Column B (from tush to toe). How about cinematic? My life is combination chick flick/ medical drama/black comedy. The point is that I’m living in a shitstorm of maladies. I’m visited with Parkinson’s for starters. …
I’ve been nominated!
Check it out! I have been nominated for an Academy Award....oops, that's the unfiltered part of my brain that you're not supposed to see. In truth, I've been nominated for an International Women's Podcasting Award (Click on the down arrow in the catrgory "Moment of Factual Clarity) by Everybody Media. an innovative, women-led media company …
I quit …. And other lies
Yesterday, as I spent way too much time sorting and storing pills, I walked into a different room, sat myself down and made a declaration to myself and to the world: “I am doing the unheard of in the chronic illness community. "I'm taking the day off." What does that mean, exactly? For one, no …
I am my father’s daughter.
I feel both jazzed and embarrassed to share a rather private wish. Now you’re chuckling. Her? Embarrassed? She blurts stuff I’d never dream of revealing except to my most trusted friends. And here it is. As I stated, announced with equal parts excitement and shyness. I’m trying to turn this here blog into a book. …
How to be with your friend with PD
If it looks like a duck… in my case, I resemble the healthy looking duck. I try to pass as a person who’s never had a twitch or a body that aches deeply several times a week. Yes, there is the occasional get out of jail free card, what I call a pain free day …
Laugh it up
Who couldn’t use a good laugh? (and don't forget about my podcast, Parky Conversations.) So I’m taking responsibility for your positive mental state by providing you with a menu of laughter-inducing content. You may find none of it to your liking- humor is after all very personal. Or you may say “Thank you Andi for …
Moving and Shaking 